Alopecia Areata: The shame and embarrassment of this disease devastates the lives of too many women and girls when treatments do not work. Since 2007 Bald Girls Do Lunch has connected with over 3,000 to restore self-confidence and conquer isolation. With requests for meet-ups in every state and beyond the USA, Bald Girls is answering the plea for women to find others for community and support. From intimate groups to style workshops to restoring her looks, BGDL puts women on the track to normalcy and living well with this disease.Learn more...
Thea Chassin (middle) with two European researchers for GRIDD: Global Research on the Impact of Dermatological Disease. Ms Chassin is the founder and CEO of Bald Girls Do Lunch.
Memo to: Awesome Bald Girls Do Lunch community
Your voices about life with alopecia areata, the ‘voice of the patient’, gains influence in today’s dermatology research. Your participation is the backbone of Bald Girls Do Lunch. You tell us what impacts you most.
As part of our Bald Girls community, you know firsthand the impacts of alopecia areata. That’s also what the FDA wants to learn. They held an AA patient-focused meeting in September 2017 attended by Bald Girls Do Lunch CEO, Thea Chassin.
Has your personal space ever felt a little too “personal?” This year at the Consumer Electronics Show, designer Anouk Wipprecht debuted the Spider Dress. The spider’s “legs” extend out to protect the wearer sensing threats either based off the breathing patterns of the person wearing it or if someone approaches too quickly.
Sometimes as women with alopecia, we are approached by others who feel it is ok to rub our heads or get in our personal space in a way that isn’t socially acceptable for people with hair, similarly to how people feel it’s ok to rub a pregnant woman’s belly… even if that woman is a complete stranger!
We want to hear from YOU! Is this concept cool/not cool? What are your personal experiences? BGDL wants to educate on this topic and we want to know your experiences!
The FDA has been holding public meetings on 20 different disease areas, one disease per area over the last year or so to continue through 2017. Alopecia Areata is on a preliminary list to be chosen as a disease in the FDA’s process for patient-focused input for the 2016-2017 disease-specific meetings. The FDA is currently inviting commentary on this preliminary list.
Bald Girls Do Lunch is giving our network a quick way to give feedback to the FDA.
The FDA staff wants your views to better understand patients’ opinions about which diseases patients consider to be a high priority.
Our easy form and quick guidelines will focus your feedback. Act now!