Bald Girls Do Lunch, Inc., P O Box 9122, Scarborough, NY 10510
Alopecia Areata: The shame and embarrassment of this disease devastates the lives of too many women and girls when treatments do not work. Since 2007 Bald Girls Do Lunch has connected with over 3,000 to restore self-confidence and conquer isolation. With requests for meet-ups in every state and beyond the USA, Bald Girls is answering the plea for women to find others for community and support. From intimate groups to style workshops to restoring her looks, BGDL puts women on the track to normalcy and living well with this disease. Learn more...
BGDL Fact Sheet
Posts
From personal stories to genetic researchers to tips for women and girls, here are a few of the articles we’ve featured over the last month:
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Advance RSVP Required. Space is still available!
Read about the events in a recent announcement here.
Jenna Baker’s online Fundraiser for Bald Girls Do Lunch is hosting the first Draper, UT meet-up for women and girls with alopecia.
Read the full announcement here.
Your donations to the fund are tax-deductible contributions to the Bald Girls Do Lunch nonprofit. Tax receipts are provided.
Here are a few of the reasons why:
“Bald Girls Do Lunch is a phenomenal organization! BGDL offers resources, support and most importantly a community where I fit in and feel like “one of the girls.” BGDL offers the latest information on clinical research – the good and the bad. It offers hope, not specifically for a cure, but for being at peace with who I am as a bald woman. It offers advice on talking about being bald and it also offers humor, which is probably one of the hardest things to regain when your hair is gone!”
“I have very recently been diagnosed with rare scarring frontal fibrosing Alopecia and am having trouble with the rapid hair loss. My dermatologist has told me that my hair will never come back and has suggested I wear a wig. As a person who hates even wearing a hat in winter I was in shock. I thought I was alone and had no where to turn. My internet search led me to BGDL and thank heavens for that. I look forward to having a community of women who are in the same boat. I will value their help and support as I learn to deal with this affliction.”
“I am so grateful for Bald Girls Do Lunch. Alopecia Aerata is such a hard thing to live with. It is so helpful to read about others experiences as well as the educational information it makes available. This is so isolating but BGDL helps us to live with this disease.”
The FDA has been holding public meetings on 20 different disease areas, one disease per area over the last year or so to continue through 2017. Alopecia Areata is on a preliminary list to be chosen as a disease in the FDA’s process for patient-focused input for the 2016-2017 disease-specific meetings. The FDA is currently inviting commentary on this preliminary list.
Very recently while speaking with one of my cherished childhood friends, she told me about a friend of hers that she suspects has the condition. I wanted to hear her advice for men and women like her friend who have never mentioned why they look the way they do.
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