Bald Girls Do Lunch, Inc., P O Box 9122, Scarborough, NY 10510
Alopecia Areata: The shame and embarrassment of this disease devastates the lives of too many women and girls when treatments do not work. Since 2007 Bald Girls Do Lunch has connected with over 3,000 to restore self-confidence and conquer isolation. With requests for meet-ups in every state and beyond the USA, Bald Girls is answering the plea for women to find others for community and support. From intimate groups to style workshops to restoring her looks, BGDL puts women on the track to normalcy and living well with this disease. Learn more...
BGDL Fact Sheet
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Bald Girls Do Lunch conducted an online survey of self-selected adults identifying as female and having any type of alopecia areata.
Which of the following are feelings or challenges you have encountered at any time in living with alopecia areata? Check all that have ever applied to you.
| Bar Color | % | Answer |
|---|---|---|
| 72.9 | Frustration that there are no treatments to help me | |
| 67.2 | Worrying that people are staring at me | |
| 65.0 | Worrying that people think I’m wearing a wig | |
| 64.4 | Wishing I was normal | |
| 64.4 | Fearing that my wig will come off or look fake in windy weather | |
| 63.3 | Wishing I was attractive as I used to be | |
| 62.1 | Feeling uncomfortable that people assume I am a cancer patient | |
| 52.5 | Afraid that my spouse or partner no longer finds me attractive | |
| 49.2 | Feeling like a freak | |
| 47.5 | Explaining that I am not going through chemotherapy | |
| 44.1 | Dealing with friends or family who think they know what treatments I should try | |
| 41.8 | Worrying that my hair will fall out again after regrowth | |
| 41.8 | Feeling ashamed | |
| 41.2 | Feeling that I will not attract a mate | |
| 40.7 | No longer doing activities I once enjoyed | |
| 23.6 | All other responses |
A daring grade schooler and her mom reveal why they choose to address alopecia head-on within family, school and community. Their insights on squashing bullies and bedazzling a beautiful bald head inspire smiles.
Eli Lilly is the first pharmaceutical company to receive FDA approval for systemic treatment of severe, adult alopecia areata with JAK Inhibitor molecules. The medication, Olumiant (baricitinib), is taken orally once a day.
Two other pharmaceutical companies, Concert and Pfizer, are not far behind. Both will be seeking FDA approval for their treatments using JAKs at the conclusion of their clinical trials.
Concert’s trial is known as THRIVE AA-2.
Pfizer’s trial is known as ALLEGRO.
The Inside Edition TV show on CBS with Thea Chassin & women with Alopecia Areata.
7 pm eastern and pacific on CBS
In what city will you and your friends be heading out to celebrate over lunch?
Let us know by sending an email to events@BaldGirlsDoLunch.org.
The National Bald Out is your special day.
“If you ever wanted to go out bald with other women, The Bald Out is for you.”
~ Thea Chassin CEO and Founder, Bald Girls Do Lunch
DETAILS:
6:30 pm, Tarrytown Riverwalk, Tarrytown NY
Meetup location: On the Riverwalk just west of 240 West Main St. Park in Lot E
Bridges, buildings and other landmarks across the United States will be illuminated blue in September to raise awareness for this important autoimmune disease.
The current illumination schedule is HERE. Any updates or additions to the schedule will be posted on this website.
If you plan to visit an illumination, we invite you to take a photo and tag your social media postings with the hashtag: #LightItUpBlue4AlopeciaAreata.
Read More »
A clinical research study is currently recruiting adults
Ages 18-65 with a diagnosis of alopecia areata
Who have lost 50% or more of the hair on their head
To participate in a study of an oral investigational drug.
For more details visit the U.S. National Library of Medicine’s Clinical Trials website.
Bald Girls Do Lunch is providing this announcement for informational purposes only. Bald Girls Do Lunch does not imply endorsement. The decision to participate is voluntary and wholly the responsibility of the individual person.
