Alopecia Areata: The shame and embarrassment of this disease devastates the lives of too many women and girls when treatments do not work. Since 2007 Bald Girls Do Lunch has connected with over 3,000 to restore self-confidence and conquer isolation. With requests for meet-ups in every state and beyond the USA, Bald Girls is answering the plea for women to find others for community and support. From intimate groups to style workshops to restoring her looks, BGDL puts women on the track to normalcy and living well with this disease.Learn more...
Bald Girls Do Lunch conducted an online survey of self-selected adults identifying as female and having any type of alopecia areata.
Which of the following are feelings or challenges you have encountered at any time in living with alopecia areata? Check all that have ever applied to you.
Bar Color
%
Answer
72.9
Frustration that there are no treatments to help me
67.2
Worrying that people are staring at me
65.0
Worrying that people think I’m wearing a wig
64.4
Wishing I was normal
64.4
Fearing that my wig will come off or look fake in windy weather
63.3
Wishing I was attractive as I used to be
62.1
Feeling uncomfortable that people assume I am a cancer patient
52.5
Afraid that my spouse or partner no longer finds me attractive
49.2
Feeling like a freak
47.5
Explaining that I am not going through chemotherapy
44.1
Dealing with friends or family who think they know what treatments I should try
41.8
Worrying that my hair will fall out again after regrowth
A daring grade schooler and her mom reveal why they choose to address alopecia head-on within family, school and community. Their insights on squashing bullies and bedazzling a beautiful bald head inspire smiles.
Two other pharmaceutical companies, Concert and Pfizer, are not far behind. Both will be seeking FDA approval for their treatments using JAKs at the conclusion of their clinical trials.
Concert’s trial is known as THRIVE AA-2. Pfizer’s trial is known as ALLEGRO.
Landmarks and Bridges Are Illuminating Blue for Alopecia Areata Awareness Month
Bridges, buildings and other landmarks across the United States will be illuminated blue in September to raise awareness for this important autoimmune disease.
The current illumination schedule is HERE. Any updates or additions to the schedule will be posted on this website.
If you plan to visit an illumination, we invite you to take a photo and tag your social media postings with the hashtag: #LightItUpBlue4AlopeciaAreata.
A clinical research study is currently recruiting adults
Ages 18-65 with a diagnosis of alopecia areata Who have lost 50% or more of the hair on their head To participate in a study of an oral investigational drug.
Bald Girls Do Lunch is providing this announcement for informational purposes only. Bald Girls Do Lunch does not imply endorsement. The decision to participate is voluntary and wholly the responsibility of the individual person.